Why is research involving people with Alzheimer's disease difficult?
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Arch Psych Psych 2012;14(2):41–47
The article reflects the reasons for the scarcity of patient-inclusive projects in Alzheimer's disease psychosocial research. Among the prejudices concerning research methods the authors identify and examine: 1. the expectation to obtain rich data while involving as little means as possible, 2. the belief that investigating experiences of AD patients poses specific challenges to the researcher and 3. the conviction that the scientist's role is abused by such challenges. The attitude towards involving people with AD in research is also shaped by fear and stigma connected with the disease. The need to apply a metaclinical perspective is suggested.